Aaron is more than a promising young medical researcher; he is a leader in the thalassemia community with the type of proactive and positive thinking that has inspired so many to reach higher," remarks Anthony Viola, President of the Cooley's Anemia
who specializes in Cooley's anemia
research, discusses this severe and potentially fatal disease, addressing its emotional and medical impact on patients and their families through six real-life stories, as well as current research, the search for a cure, and therapy and future approaches to thalassemia, such as gene therapy, stem cell transplantation, and antenatal diagnosis.
Children born with the beta thalassemia major (also known as Cooley's Anemia
in many countries) may experience profound anemia, jaundice, and failure to thrive prior to diagnosis.
We took the required blood tests, and the doctor suggested we both go see our own physician and be checked for Cooley's anemia
Patients with the most serious form of beta-thalassemia -- called Cooley's anemia
-- seldom lived to see their 15th birthdays.
16 organizations were supported, including Autism Speaks, Revlon Run/Walk, Donate Life, the Cooley's Anemia
Foundation, the American Diabetes Association, the Society for the Prevention of Cruelty to Animals, and the Children's Hospitals of Orange County and Philadelphia
based clinical trial in gene therapy for beta-thalassemia has begun treating trial participants and the Cooley's Anemia
Foundation (CAF) congratulates the researchers involved in the project on the reaching this important stage.
For many years, Lou has chaired an annual golf outing that benefits the fight against Cooley's anemia
Lakeview Consultants, a specialized sales and marketing firm based in Mahopac, New York, held a bowl-a-thon event at the Yorktown Bowling Alley to support the Cooley's Anemia
Foundation, a leading nonprofit organization dedicated to serving people afflicted with various forms of the genetic blood disease thalassemia as well as searching for a cure.
24 -- Castle Oil will holds Cooley's Anemia
international golf outing from 10 a.
Thanks to scientific advances, individuals with thalassemiaa group of genetic blood disorders which includes Cooley's Anemia
are now living into their 40's and 50's.