'The EHC welcomes all initiatives that help spotlight the benefits of being physically active, in the right individualised way, for each person with a bleeding disorder
,' said Amanda Bok, CEO of the EHC.
The ISTH abstract was entitled: "Correcting Bleeding Disorders
Using Blood Clotting Factors Produced In Vivo By Shielded Engineered Allogeneic Cells" and was presented by David Peritt, Ph.D., Sigilon's chief technology officer.
Inherited platelet-based bleeding disorders
. J Thromb Haemost.
Prof Dr Mohammad Khurshid, head of the oncology department at Aga Khan University Hospital, the chief guest, spoke about the importance of World Haemophilia Day and how it helped in raising awareness about bleeding disorders
On this World Haemophilia Day we highlighted the need for treatment for all people with a bleeding disorder
and this can only be achieved with the help of the community at large.
The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders
and to preventing the complications of these disorders through education, advocacy and research.
Sofia Trinidad, then 51, was a hemophiliac, afflicted with a rare bleeding disorder
where the blood doesn't clot normally.
Trinidad said there are around 10,000 Filipinos with hemophilia and approximately 1 million others with related bleeding disorders
, such as Von Willebrand Disease.
Over one-third of adolescents presenting with heavy menstrual bleeding were diagnosed with a bleeding disorder
after screening, according to results of a retrospective study.
SOL is an international partner of HPWS, which provides sponsorship, scholarship and enterprise grant opportunities for people with bleeding disorders
in developing countries.
These diseases include bleeding disorders
, immune deficiencies, pulmonary disorders, neurological disorders, and infectious diseases such as tetanus, hepatitis, and rabies.
A group of Filipino hemophilia advocates have expressed their support to the passage of a measure seeking government funding and the establishment of treatment centers for persons with bleeding disorders
Councilor Mary Joselle Dilig-Villafuerte, committee chair on health, in her privilege speech asked Councilor Danilo Dayanghirang, Philippine Councilors League's (PCL) national chairman, to lobby with the group for the approval of the Bleeding Disorders
Standard of Care Bill in both Congress and Senate.
The theme of World Hemophilia Day 2018 is "Sharing Knowledge Makes Us Strong," stressing on the importance of sharing what you know about bleeding disorders
with as many people as possible in order to help millions who remain without awareness or access to proper treatment.