com) reported today that the first patent related to Thymosin beta 4 (T[eth]4) for the treatment of Epidermolysis Bullosa
(EB) has been issued in Australia.
We are very pleased with the approval of orphan drug designation for treating epidermolysis bullosa
He has dedicated the past six years to raising funds for the charity Dystrophic Epidermolysis Bullosa
However, Calos is confident that her technique will be a part of the journey towards a cure for the disease and for other diseases such as hemophilia and the skin disease, epidermolysis bullosa
Robert Ryan, president and chief executive officer, will present at the Dystrophic Epidermolysis Bullosa
Research Association (debra[sup.
The 36-year-old died in September but left behind a legacy of hope for fellow victims of epidermolysis bullosa
, a cancer-related disorder.
All the proceeds will go towards Debra, a self help group for children suffering from epidermolysis bullosa
In addition to having received FDA approvals for the treatment of Epidermolysis Bullosa
and donor sites in burn patients, a pivotal clinical trial has been completed for venous ulcers, and a PMA has been filed.
Ronald Nardi, chief scientific officer of Scioderm said, "Scioderm is at the leading edge of developing treatments for epidermolysis bullosa
and I have closely followed the development of SD-101.
Jonny, who lived in Alnwick, Northumberland, died last September from the agonising and incurable skin condition epidermolysis bullosa
The group, based at St Mary's Church in Hinckley Road, also made collages to help children who have the skin complaint Dystrophic Epidermolysis Bullosa
, which leaves them with skin so fragile it can blister at the slightest touch.
today announced that the Committee for Orphan Medicinal Products (COMP) issued a positive opinion on the application for orphan designation for SD-101 for the treatment of patients with Epidermolysis Bullosa
, (EB), a rare orphan pediatric disease.
Nell, 30, who has family in Gateshead, raised hundreds of pounds for DebRA, which supports people with epidermolysis bullosa
, which leaves the sufferer covered in blisters and sores.
was honored with the Partners in Progress Award from the Dystrophic Epidermolysis Bullosa
Research Association of America (DEBRA).
Although Jonny Kennedy, pictured, was a North East lad, like many I had never heard of him or the painful skin condition dystrophic epidermolysis bullosa