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Miss Rees, of Horsley Vale, South Shields, has helped establish an interactive support group for others affected by Joubert's syndrome.
Caring Joanne, 32, has now taken her daughter's plight online, helping to set up an interactive support group for Joubert's Syndrome in the UK.
Her mother Tina, from Naas, Co Kildare, nominated her for the award after Amy put her young life on hold to look after six-year-old Colleen, who suffers from rare Joubert's Syndrome.
Neve, of South Shields, South Tyneside, was diagnosed with Joubert's syndrome, a condition which has left her severely physically disabled.
Neve Rees-Burton, of South Shields, has Joubert's Syndrome, a rare genetic disorder.