I remain inspired by David and Lynn's dogged pursuit of a better understanding of Fanconi anemia
and humbled by their profound commitment to improving the lives of others," says Grover Bagby, founding director of the Oregon Health & Science University's Knight Cancer Institute.
Barry Rubenstein is a local attorney and president of the Fanconi Anemia
Research Fund board of directors.
As we race to find a cure for Fanconi anemia
, I express my endless thanks to these three brave individuals and all who contribute to our effort in any way," Fisher said.
Keller, who had previously lived in Springfield, worked nine years for the Eugene nonprofit agency founded by Frohnmayer and his wife, Lynn, to find effective treatments and a cure for Fanconi anemia
SBA raised money for the American Cancer Society and American Heart Association, and groups dedicated to finding cures for Parkinson's disease, amyotrophic lateral sclerosis, and fanconi anemia
He also suffers from Fanconi anemia
, a rare disease that often leads to cancer.
Outcomes after related and unrelated umbilical cord blood transplantation for hereditary bone marrow failure syndromes other than Fanconi anemia
It also reviews key players involved in the therapeutic development for Fanconi Anemia
All five types of Fanconi Anemia
, a red and white blood cell and platelet deficiency, are inherited, but Type C is the most common.
Enter the Institute for Justice, which in 2009 filed suit on behalf of a group of patients, including Lewiston, Maine mother Doreen Flynn, three of whose children are afflicted with a blood disease called Fanconi anemia
On Friday, January 27, Wildes was finally able to meet the girl whose life he saved, a six-year-old Evansdale, Towa, girl who suffered from Fanconi anemia
, an extremely rare genetic blood disorder that attacks the bone marrow.
In addition to serving its clientele, SYSTEMATICS and its 30 employees are staunch supporters of several community non-profit organizations, including the Shrewsbury American Youth Football and Cheer Organization, which serves hundreds of the area's young athletes, Coley's Cause, which raises funds for fighting the orphan disease Fanconi Anemia
, and the Tufts Health Plan 10K for Women.
Samantha and David, 37, found when their daughter Jessica was nine that she had the rare condition Fanconi Anemia
3% were reported in an International Fanconi Anemia
Registry (IFAR) study.
In 1989, Dave and Lynn founded the Fanconi Anemia